Brain Injury Awareness Month!

June is Brain Injury Awareness Month and to kick off the month the Brain Injury Society of Toronto (BIST) is launching a campaign asking if you are aware?

Are you aware that a BRAIN INJURY CAN HAPPEN TO ANYONE?

The impact of a brain injury can be devastating not only to the survivors themselves, but to their family members, caregivers, friends and their community. It can affect every aspect of their life, often resulting in loss of livelihood, isolation, and physical, emotional and behavioral challenges.

Your brain is who you are, it’s your humanity. Just as no two people are alike, no two acquired brain injuries are alike. Survivors will experience the effects of acquired brain injuries in many different ways.

http://www.areyouaware.ca/

areyouaware

After a brain injury a person may experience many of the following changes:

  • difficulties remembering new events, appointments, daily tasks
  • changes to his or her personality
  • frustration over things that used to be easily accomplished which are all of a sudden difficult tasks
  • increase in impulsive behaviours

These changes and many more can be very confusing. There is also a tremendous loss of aspects of their pre-injury life and routine – things that are no longer possible for a person to continue to do. Although on the surface, a person may look exactly the same, his or her brain has changed and this can be frustrating for brain injury survivors to convey to people.

Many people with a brain injury experience seizure activities. We talked about this in our group and most participants are able to manage the frequency of seizures with medication. When a person has a seizure, they are unsafe to drive and for a person who is used to hopping in the car daily and enjoys the experience of driving – this loss of independence is massive.

FOND MEMORIES – A Series by Inder

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I am very fond of driving. It gives me freedom, independence and excitement. I am very comfortable in the car. I’ve always wanted to buy a particular car.

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Last year, I finally bought the car – a Red Convertible.

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Exactly two days later, my Neurologist advised me that I shouldn’t be driving so I respected what the Doctor said and I stopped driving.

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I went through the Drive Again program – and passed. Then the winter came and I decided to park the car in the garage. Then spring came and I took the car out and drove for about a week or so.

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Then I had a seizure and the Doctor told me I shouldn’t be driving and I got a letter from the Ministry advising me to stop driving.

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Within a week, the car went back in the garage and I felt devastated.

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Then I made a decision. I felt that there was no point in keeping the car sitting in the garage, so I told my friend to help me sell my car. So he took the car two days ago.

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So, there’s a saying back home – if you want to do something good tomorrow, do it today. If you want to do something good today, do it now. Whatever happens, happens for the good. In spite of going through a tough last 3-4 years, medically, I met a number of very nice people who are very kind to me that I may not have met otherwise. — Inder

Inder shared his story with our group and the impact of this loss was palpable to everyone in the room. When Inder and I sat down to write this story, he look distant at times, worried, concerned, and at a loss yet the story that was very clear and visible in his mind. At the end of the story, when he sold his car, I had asked him “Is this the end of the story?” After sitting back and reflecting, he was able say “Whatever happens, happens for the good” and he had a big smile on his face as he thought about the people whom he has met due to his brain injury and although the journey is tough and arduous at times, and life gives and takes, survival is victory and reminds us that we are strong and life is a gift.

 

 

 

 

 

 

 

Spring Flowers

After a long and dark winter, spring has arrived in Toronto. The flowers have arrived and we are blooming with inspiration from our new group of participants. All photographs below were artfully arranged by Fiona, our new mentor for the group. I officially would like to welcome all new participants to the group and look forward to our time together meditating, creating art, sharing stories and finding meaning.

Mindful Art Workshop - Spring 2014
Mindful Art Workshop – Spring 2014

 

Can't Stop Tomorrow by Fiona
Can’t Stop Tomorrow by Fiona

“I’m thankful for getting the opportunity to meet everyone here, it’s always a pleasure to be able to meet other people who know about brain injury and who are generous enough to share their story. Thankful to the community I have around me, my friends, family, and colleagues. I’m just thankful to be here today.” Fiona

Dedication to Amee
Dedication to Amee

“Thankful to Amee for letting me be here and attend this session and letting me get to know two other very nice people. Also thankful to the god for giving me two legs to stand on and two arms for holding other people’s hands. 2 meals a day and a roof over my head and family and friends. For everything despite the head injury I have, I’m still able to breathe and walk and talk and do many things which millions of other people are not able to do.” Inder

LIfe 5
Life by Neil

“I’m thankful this group is very, very, very relaxing, I like doing the art which I get frustrated over, it was very relaxing this group, this group is a very good group, and I am thankful I joined it. Thank you all to the leaders and the two people I met here. Thank you for such a relaxing and good group.” Neil

Storms, Strength & Wisdom

New year and we have a new group! This is our second week and the theme of the class is: storms, strength and wisdom. In Toronto, we have had a series of ice storms that have caused electrical blackouts and icy conditions. Many living in the city, especially those with a disability have had to live through days without electricity. This means limited access or no access to elevators, hot water, assistive devices that depends on electricity. So our theme for the week starts with the storm – both the ice storm and personal, emotional, traumatic storms of our lives. I read the following message of resilience to our group:

“The earth has a heartbeat. In between each beat is silence. That silence is when the life force gathers strength for the next beat. You must learn to do the same. Use the silence to gather yourself. Life can give you strength. Life gives and life takes. As it is teaching you even now. Life takes our time and everyday is one day closer to the end of our journey on this. It takes our efforts our sweat, our best intentions, our noble ideas, our dreams and sacrifices. And often demands more. Then it gives us obstacles, surprises, disappointment, indifference, confusion, doubt and heartache. Yet life does give us much more than the obvious. If we can look back on the difficulties we have know, whether old or new, then we have moved past them at least in time. That we are looking back on a tough experience from the perspective of the present moment means we have survived it. The experience may have taken a toll, as difficulties do. But whatever our losses have been, we have survived. Survival is victory, because we know or we are reminded that is it possible. Survival is victory because life has given us something along with the difficulty.”

“The experience the difficulty has taught us or reminded us that we can be strong.” by Joseph Marshall III – Keep Going from Soundstrue

I would also like to add, that through hard times, we also gain wisdom that comes from the enduring the difficulties. This can open our hearts further so we surface with more love and compassion for others who have also endured this journey. I am proud to share art work from this theme.

Remember - Forward by Micky
Remember – Forward by Micky
The Beautiful Sunshine by Maria
The Beautiful Sunshine by Maria
Storm by Roxanne
Storm by Roxanne
Break Time by Stella
Break Time by Stella
Walking on the Earth by James
Walking on the Earth by James
Rebirth by Robert
Rebirth by Robert
Ancient by Dr. L. Longo
Ancient by Dr. L. Longo
The Five Directions by Amee Le
The Five Directions by Amee Le

Blockage + Vulnerability = Freedom

Blockage, vulnerability, freedom gif

Have you ever felt so closed up that it became normal? Do you remember a time when you felt free? Have you asked yourself – “Why am I so guarded?”

When it comes to art and expressing ourselves there is a conscious effort to connect with our heart and that takes courage to be vulnerable. The word vulnerable can have a negative edge to it. I have heard of people with an acquired brain injury being referred to as the vulnerable population.

There is truth in this, as many of the people who come to share their time with me are vulnerable, even tender, but with encouragement they are intensely brave to take on the task of looking at their barriers their blockage and express what is inside.

The barriers come to try and protect us because our past histories are occupied with pain, hurt, and disappointment and this can lead to the feeling of blockage, being closed up and guarded. To expand on the perception of blockage and vulnerability I’ve tried to explain this as black and white thoughts. We have black thoughts and we have white thoughts. During the Mindful Art Workshop, we meditate on the black and white perspectives and the participants created these eraser carvings (click here) to illustrate the two sides of the same coin.

We then printed the stamps on a black canvas, and it magnified the white art. Perhaps we need the barriers and the ‘black thoughts to have a canvas where our vulnerability and white thoughts can shine. When we show ourselves love and kindness we accept our blockage and we accept our vulnerability; for without one the other would not glow so brightly.

Then we find ourselves starting to open up and the barriers perhaps are lowered slightly. Then perhaps our hearts beat a bit more mighty as we gather the courage to show ourselves love and kindness for all the parts, bit and pieces of ourselves. Then we are that much closer to freedom.

Prints from this workshop:

Black & White Print by Chris
Black & White Print by Chris
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Black & White Print by Workshop Participant
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Art Work by Workshop Participant