Brain Injury Awareness Month!

June is Brain Injury Awareness Month and to kick off the month the Brain Injury Society of Toronto (BIST) is launching a campaign asking if you are aware?

Are you aware that a BRAIN INJURY CAN HAPPEN TO ANYONE?

The impact of a brain injury can be devastating not only to the survivors themselves, but to their family members, caregivers, friends and their community. It can affect every aspect of their life, often resulting in loss of livelihood, isolation, and physical, emotional and behavioral challenges.

Your brain is who you are, it’s your humanity. Just as no two people are alike, no two acquired brain injuries are alike. Survivors will experience the effects of acquired brain injuries in many different ways.

http://www.areyouaware.ca/

areyouaware

After a brain injury a person may experience many of the following changes:

  • difficulties remembering new events, appointments, daily tasks
  • changes to his or her personality
  • frustration over things that used to be easily accomplished which are all of a sudden difficult tasks
  • increase in impulsive behaviours

These changes and many more can be very confusing. There is also a tremendous loss of aspects of their pre-injury life and routine – things that are no longer possible for a person to continue to do. Although on the surface, a person may look exactly the same, his or her brain has changed and this can be frustrating for brain injury survivors to convey to people.

Many people with a brain injury experience seizure activities. We talked about this in our group and most participants are able to manage the frequency of seizures with medication. When a person has a seizure, they are unsafe to drive and for a person who is used to hopping in the car daily and enjoys the experience of driving – this loss of independence is massive.

FOND MEMORIES – A Series by Inder

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I am very fond of driving. It gives me freedom, independence and excitement. I am very comfortable in the car. I’ve always wanted to buy a particular car.

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Last year, I finally bought the car – a Red Convertible.

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Exactly two days later, my Neurologist advised me that I shouldn’t be driving so I respected what the Doctor said and I stopped driving.

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I went through the Drive Again program – and passed. Then the winter came and I decided to park the car in the garage. Then spring came and I took the car out and drove for about a week or so.

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Then I had a seizure and the Doctor told me I shouldn’t be driving and I got a letter from the Ministry advising me to stop driving.

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Within a week, the car went back in the garage and I felt devastated.

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Then I made a decision. I felt that there was no point in keeping the car sitting in the garage, so I told my friend to help me sell my car. So he took the car two days ago.

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So, there’s a saying back home – if you want to do something good tomorrow, do it today. If you want to do something good today, do it now. Whatever happens, happens for the good. In spite of going through a tough last 3-4 years, medically, I met a number of very nice people who are very kind to me that I may not have met otherwise. — Inder

Inder shared his story with our group and the impact of this loss was palpable to everyone in the room. When Inder and I sat down to write this story, he look distant at times, worried, concerned, and at a loss yet the story that was very clear and visible in his mind. At the end of the story, when he sold his car, I had asked him “Is this the end of the story?” After sitting back and reflecting, he was able say “Whatever happens, happens for the good” and he had a big smile on his face as he thought about the people whom he has met due to his brain injury and although the journey is tough and arduous at times, and life gives and takes, survival is victory and reminds us that we are strong and life is a gift.

 

 

 

 

 

 

 

Life

A series by Neil.

All photographs were taken by Fiona. The narrative was written by Neil with the help of Carrie M. who recommended Neil for the group and provides weekly encouragement and support, to help Neil through his week.

Life by Neil

This print shows the connection between family and life. The four corners represent each member of my family (me, mom, dad and brother) and shows how we are all connected to each other.

Life by Neil

 I called this print life because you cannot isolate yourself from anything. Living with an injury, you must live as normal a life as possible You have to stay connected to all things and fit in with the group.

Life 4

Life means love. Loving everything that is possible and not being scared of trying things and fitting in. Caring for the place you are living in.

LIfe by Neil

 We are all connected to each other within nature and our environment.   If you are connected with your family, you can understand their moods and what is needed to help them with their day and showing that you love them.

Life 2

This print came to mind because of the relationship with my brother and how my parents have to interfere as opposed to us all being happy together as a family. This interrelationship within my family impacts my life. When my family is connected and happy, I am happy. –Neil

 

 

 

 

 

Storms, Strength & Wisdom

New year and we have a new group! This is our second week and the theme of the class is: storms, strength and wisdom. In Toronto, we have had a series of ice storms that have caused electrical blackouts and icy conditions. Many living in the city, especially those with a disability have had to live through days without electricity. This means limited access or no access to elevators, hot water, assistive devices that depends on electricity. So our theme for the week starts with the storm – both the ice storm and personal, emotional, traumatic storms of our lives. I read the following message of resilience to our group:

“The earth has a heartbeat. In between each beat is silence. That silence is when the life force gathers strength for the next beat. You must learn to do the same. Use the silence to gather yourself. Life can give you strength. Life gives and life takes. As it is teaching you even now. Life takes our time and everyday is one day closer to the end of our journey on this. It takes our efforts our sweat, our best intentions, our noble ideas, our dreams and sacrifices. And often demands more. Then it gives us obstacles, surprises, disappointment, indifference, confusion, doubt and heartache. Yet life does give us much more than the obvious. If we can look back on the difficulties we have know, whether old or new, then we have moved past them at least in time. That we are looking back on a tough experience from the perspective of the present moment means we have survived it. The experience may have taken a toll, as difficulties do. But whatever our losses have been, we have survived. Survival is victory, because we know or we are reminded that is it possible. Survival is victory because life has given us something along with the difficulty.”

“The experience the difficulty has taught us or reminded us that we can be strong.” by Joseph Marshall III – Keep Going from Soundstrue

I would also like to add, that through hard times, we also gain wisdom that comes from the enduring the difficulties. This can open our hearts further so we surface with more love and compassion for others who have also endured this journey. I am proud to share art work from this theme.

Remember - Forward by Micky
Remember – Forward by Micky
The Beautiful Sunshine by Maria
The Beautiful Sunshine by Maria
Storm by Roxanne
Storm by Roxanne
Break Time by Stella
Break Time by Stella
Walking on the Earth by James
Walking on the Earth by James
Rebirth by Robert
Rebirth by Robert
Ancient by Dr. L. Longo
Ancient by Dr. L. Longo
The Five Directions by Amee Le
The Five Directions by Amee Le

Mindful Art at the Holiday Party

We had our first Mindful Art Display at the CHIRS’ (cheers) holiday party (Community Head Injury Resource Services of Toronto). It was a wonderful night to celebrate this special events with friends and family and our community of persons whose lives have all been shaped by an acquired brain injury.

Mindful Art Display
Mindful Art Display by Amee Le & Dr. Carolyn Lemsky
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Mindful Art Display at the CHIRS Holiday Party 2013
Chris and Amanda at the Art Sale
Chris and Amanda at the Art Sale
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A proud artist smiling by his art!

Brain Injury Survivors Video

Check out this video made by the drama club at Community Head Injury Resources Services of Toronto. It is a dedication to the one’s will to survive, live and thrive.